PASC, Dx 4/30/2009
In March of 2009 I was diagnosed with primary angiosarcoma of the right breast. On March 7, 2009 my husband noticed bruising under my breast and asked me what happened. I had no clue what he was talking about. I then went to look in the mirror and when I lifted up my breast I could have dropped. I never saw a bruise that big on my breast!!!! I called my primary physician Dr. Maddela and she took me in right away. She said that she would not worry about it. That it looks like a trauma to the breast. I assured her that I would have felt that hit and I didn’t get hurt at all. She agreed. And just on that little worry she sent me for a mamogram and also put into my insurance company to get a MRI done.
Imagine this, my insurance company denied the MRI due to lack of evidence. Now my biological mother had it in both her breasts, 2 little tumors that she got out in time. Also a great aunt died of breast cancer. They still denied it!! If you are reading this and unsure about something in or on your breast PUSH the issue and get that MRI some way, somehow, fight for it. Don’t give up even if it turns out to be nothing.
This is why:
Dr. Maddela was concerned only because I didn’t remember getting hurt. She never saw anything like this. She said “I wouldn’t worry but I still want you to get checked.” With the denial of MRI I went and did the mamogram. While we were waiting on those results Dr. Maddela sent me to an oncologist, Dr. Steinbruck, to take a look and push the MRI. Dr. Steinbruck also said it looks like a bad bruise. Again, I told him I didn’t get hit or I would have remembered. And this concerned him to. But he was sure it was a trauma. However he went for the MRI approval. I asked him what if they deny it again. He said “that’s when I get on the phone and get it.” I was sure it will be approved.
It was approved and I got the MRI done. Now I need a biopsy due to 3 masses. So I go get the biopsy and I learned there that I do have a form of breast cancer. They were awesome in telling me and helping me tell my mother.
The results are in and my husband and I go to the surgeon. He sat us down and started talking. I felt like I was in a lifetime movie drama. It was the most surreal time in my life, besides 9/11, that I had. I remember him telling me that in his 27 yrs of practice he never seen this before. He said that removal of the breast will be the best solution and possible treatments. He also told me to get a second opinion. Which I was that next day at Memorial Sloan Kettering in Manhattan.
I first saw a breast cancer dr. who could not take my case because it went out of her field of expertise. She then recommended me to Dr. Murray Brennan. Whom I saw the next visit. All this time I am NOT going on the interne and told everyone do not tell me anything. I know I would not have handled it well. So far I am cruising along with an incredible optimistic attitude… I knew that Dr. Brennan would fix me when I met him.
And he did. I had a mastectomy with a skin graph on May 19. Today is June 29th and I am almost 90% healed. My margins are also clear and I do not need any treatments. All I do is watch and wait now. Dr. Brennan is optimistic about it not reoccurring but can’t promise that. I feel good about that.
I did go on the internet when I came home from the surgery. I read up on everything I could find to educate myself on what I am looking forward to. I was ready to see it all. I was devastated when I read what I had.
Had lung scan on 8/21/09 showed 2 nodules in one lung. Did CT scan on 8/28/09. That was negative.
Now MRI scheduled on 10/20/09… results clear. Next MRI is end of April. All Clear again and I go back in October 2010. I did my October scans and I am still NED. I was NED. I did have a recurrence and will start chemo soon. This is just a lil set back. I will knock it out once again!
WE WILL PREVAIL!